Rubinstein-Taybi Syndrome

Dr. Rubinstein

Jack Herbert Rubinstein American pediatrician, born 1925; died July 3, 2006 and his wife Marlene H. Rubinstein, born 1934; died June 27, 2006.

Dr. Rubinstein and Mrs. Rubinstein, Las Vegas, Nevada, USA 2005.

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Dr. Taybi

Pediatric radiologist, born 1919; died August 7, 2006.

 

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Connections

 

Email lists, Facebook pages, get in touch with others.

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What is RTS…

If you are new to this site and looking for answers concerning Rubinstein-Taybi Syndrome then please visit the Book For Families. The book explains what Rubinstein-Taybi Syndrome is, characteristics and other information concerning RTS. Pihoto: Michaela Mibach

 

Our Pages

Photos and short biographies of children and adults with RTS. Also featuring family stories, sibling stories and poems. I hope through these pages everyone will feel the magic and wonderment that we feel with these very special people. Photo: Victoria Duvall

 

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Medical Information

The medical section contains the Blue Book from the 1998 Conference in Cinncinnatti, the growth charts and medical articles. Photo: Lisa Wardlow

 

Make a Donation

  • The Special Friends Foundation (SFF) is a nonprofit organization established in 1997 by Chris Garavente, whos fourth child, Louis, was diagnosed with Rubinstein-Taybi syndrome (RTS).
  • Special Friends Foundation
    PO Box 313
    Windham, NH 03087

Web: specialfriends.org

Cincinnati Children’s Hospital

The Division of Developmental and Behavioral Pediatrics at Cincinnati Children’s has made the commitment to continue to maintain an RTS program and they have given Dr. David Schor the duty of heading up that program.

Amy B. Clawson
Family Coordinator, Outreach
Developmental and Behavioral Pediatrics
MLC 9500, 3333 Burnet Avenue
Cincinnati, OH 45229-3039

Phone: 513-636-4723
Fax: 513-636-3473

Email: amy.clawson@cchmc.org

Quotes

I would not be who I am if I were not Coreys mom… he has taught me more about life in the last twelve years than I would have learned in a lifetime without him.


–Carla Jacquet Photo: Jacquet Family